Meet Sydney

This is my sister Sydney.  Sydney is 11 years old.  She has a condition known as Treacher Collins Syndrome.  Treacher Collins is a condition that affects the development of facial tissues and bones. Sydney was born with an underdeveloped mandible (jaw) and nonexistent zygomatic arches (those are your cheek bones … I’m overcompensating here and […]

XY Find It

You know that scene on Along Came Polly where Jennifer Aniston is on the phone with Ben Stiller and she can’t find her keys?  And then she finds them in the refrigerator?  This scene is my life in a nutshell.  Ever heard of “pregnancy brain”?  Well, that term is misleading.  It suggests that the condition […]

Cleo Madison

I’m excited to say that this post is coming to you from Utah! That’s right, I survived a move without my husband and a cross-country road trip with my Dad thanks to my Dad.  I’m joking of course about the “with my Dad” part.  I actually survived the road trip because of him.  30 hours […]